As I entered middle age, what I thought was normal aging turned out to be undiagnosed CF — a realization that reshaped everything from daily treatments to my understanding of my family’s health ...

After years of unexplained symptoms and setbacks, my cystic fibrosis diagnosis became both an answer and a turning point — turning my struggle into resilience and my passion into purpose.

Watching my son struggle without access to his CF medication was heartbreaking. But the hope that came when our community rallied behind us is something I’ll never forget.

The Cystic Fibrosis Foundation recently announced that there are almost 40,000 people living with CF in the United States. Not only are there more of us with CF, but we are now living longer. Based on ...

Food insecurity is a long-standing problem in America. According to the U.S. Department of Agriculture (USDA), food-insecure households are those with “limited or uncertain access to adequate food.” ...

The additional funding will support a Phase 2 clinical trial for an inhaled antisense oligonucleotide drug for people with cystic fibrosis who have the splicing mutation 3849+10Kb C-to-T. BETHESDA, Md ...

I did the research. I asked the questions. I thought I knew what to expect when I had a double-lung transplant. I was surprised by what I learned. During the 18 months I spent waiting for a ...

Prime Medicine’s prime editing technology has the potential to bring genetic therapies to all people with cystic fibrosis, ultimately paving the way to a cure. BETHESDA, Md. — Today, the Cystic ...

Okay! I'm about to spill some tea -- the tea about being a Black girl with cystic fibrosis. CF and I are pretty familiar with each other, so I refer to her as Cynthia Fibrosis. Cynthia and I have ...

Growing up with cystic fibrosis made me stubborn and determined to accomplish everything that I was told I could not do. At my elementary school track and field day, I would make sure to always choose ...

The Cystic Fibrosis Foundation is funding the development of a gene editing therapy that is designed to use ReCode’s tissue-specific delivery vehicle to transport gene editing cargo to the lung cells ...

Dr. Steven Rowe will support mission to cure cystic fibrosis by leading the Foundation’s research strategy, focusing on genetic therapies BETHESDA, Md. -- Today, the Cystic Fibrosis Foundation ...