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0:48
Experience the incredible story of overcoming genetic generalized dystonia.
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I was recommended brain surgery as a last ditch effort to treat what they thought was generalized dystonia. It turns out I should have said no. I woke up after the surgery and was unable to speak. I started using sign language, but the nurses didn’t understand. My sister knew some and helped translate as my parents didn’t know much at all. I wasn’t very legible in my speech for a couple weeks afterwards. I don’t remember much from the first few weeks of a 2 month hospital stay. I was hanging on,
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La dystonie peut malheureusement à force des années abimer des genoux par exemple ! Cette personne atteinte de dystonie généralisée refait son #orthese avec des nouveautés en espérant que cela lui facilite sa marche et évite les #douleurs liées à son #recurvatum #maladieNeurologique #dystonie Video de sa précédente orthèse : @France Dystonie
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