NDF | What is GNE Myopathy? - Also known as HIBM, GNEM, HIBM
NDF | What is GNE Myopathy? - Also known as HIBM, GNEM, HIBM
Feb 18, 2022
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Tahira has GNE Myopathy - a rare form of muscular dystrophy. This #RareDiseaseDay we are spotlighting her story. 🧡 She was diagnosed in early 20s after noticing changes in her movements. The reality of it all hit her hard. "This was a progressive condition -- with no cure." She shares how a WhatsApp group of just 20 people with the same condition has become a powerful source of support. 📱 Watch her inspiring story and share yours today: https://loom.ly/JS3XBGo | Muscular Dystrophy UK
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