Madilynn has a rare genetic disability called Spinocerebellar Ataxia Type 5. We never knew what our life would look like, but damn it’s beautiful. For Rare Disease Week we are sharing a little more about our life. SCA5 affects her balance, coordination, and directly affects the growth of her cerebellum. Basically, it makes her brain speak slower to her body than typical people. But as you can see she’s a kid first. She laughs, loves playgrounds and being around other kids, and wants to be the be
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