Charli Gardiner-Hall lives with weakness due to Sturge-Weber syndrome, but her power is in para-athletics. Charli's story airs this Sunday 12pm on TVNZ1 and TVNZ . It will be available to watch internationally on our YouTube channel @AttitudeLive after airing. Made with the support of NZ On Air. Directed by Rebecca Mellor @tvnz.official @nz_on_air #NotSoOrdinary #SturgeWeberSyndrome #ParalympicsNZ #NZOnAir | Attitude

🤔 How was Sturge-Weber syndrome named? Thanks to Aimee F. Luat, MD's @ChildrensDMC research on the subject, this is what we know: There were a couple of doctors that were instrumental in discovering this rare disease and moving awareness forward, such as Rudolf Schirmer (1860) and Sir Hugh Cairns (1951) but we are focusing on three. • 1879–William Allen Sturge (neurologist, pathologist, England; 1850-1919) Patient: 6.5 y.o. child: focal motor seizures (left) since 6 months of age (benefited fro

My life with Sturge-Weber Syndrome 🤍 #fbreels #borndifferent #sturgeweber #sturgewebersyndrome #portwinebirthmark #glaucoma | Born Different